Day +17: Laughter and Lungs

As many of my friends are aware, I sleep walk, sleep talk, and occasionally yell in my sleep. When I have dreams I wake up to write them down in the dark and sometimes I write some pretty bizarre sentences.

Just last night I was speaking with Matt, Jason’s NA, about my sleeping habits. We chuckled about how his wife carries on full conversations and about how I may wander the halls of the hospital.

Then, Jason’s lungs started having more problems. His oxygen level dropped and he was having trouble staying awake so they performed another chest xray and determined his lungs still hold fluid. To strip some of the water off of his lungs they gave him another dose of Lasix, which would make him pee all night long. If Jason is having trouble breathing he cannot stand up and walk to the restroom so I hold the urinal by his bedside. Basically, when Jason has to pee I need to wake up and help him, then I need to write down on the white board how many ounces he urinated. I do this all the time.

Well, apparently I was exhausted because, when I woke up this morning, Matt was looking at the whiteboard with a look of confusion. If you glance at the image below you will see that I was not writing ounces but rather words. I believe he asked me, “What is ‘click’?” We laughed for quite some time and then he told every nurse on the floor about my bizarre nighttime scribbles. I hope it makes you laugh.

What was I thinking???

Jason’s lungs are still holding fluid, and he has an infection (which would explain the on and off fevers over the course of the past few days). Infectious Disease doctors believe he has pneumonia and were hoping to perform a Bronchoscopy to be certain of the very best treatment options but Jason’s platelet count is low enough that there is a risk of bleeding if the procedure is at all abrasive. If any abrasion were to occur, Jason's stomach or throat could start bleeding and would not heal, plus they would not be able to perform any surgical procedure because it would increase the bleeding. They will cut down Jason’s liquids today (reduced platelet infusions, et-cetera), and they will begin an infusion of Vancomycin antibiotics in the hopes that it will help relieve the infection in his lungs. Please pray for his lungs and his overall health.

The good news? Jason’s White blood cell count is 0.4 (woo hoo! Going up… slowly), and his platelet count is now 10 (whoah! Double digits! Yes, still incredibly low). His hemoglobin is 9.1 but this could be higher than the real number because he was holding so many fluids when this number was revealed. Basically, it appears that his marrow is slowly growing and producing. Our hope is that it will continue growing and replace the awful immune system that was killing him previously. Keep praying.

In an upcoming blog we will be discussing the role Jason’s sister will be having in Jason’s recovery.

Also, Hello to everyone in Botswana who is reading the blog and praying! Thank you to Jason and Deb Shirek for asking friends and family to pray for Jason – you two are wonderful.