Please help us...

Please help us...

Tuesday, March 12, 2013

It’s What’s on the Inside: Day +7

Today is the thirteenth day at the hospital, the 9th day after chemotherapy, and the 7th day after the transplant.

As of this morning Jason has another headache and no one can really figure this one out. He is taking Dilaudid again to relieve his pain but I think it has a side effect that Jason doesn’t seem to notice. After he takes the drug, he starts scratching his face, neck and back. With low platelets he needs to be careful because scratching has led to large blood spots under his skin. They are now on his face, chest, shoulders and back. Without platelets these spots are not healing. And if there are any bacteria under his fingernails he needs to avoid scratching his skin to prevent the possibility of an infection; chemotherapy has taken away most of his immune system’s fighting chance to destroy an infection.

And the hair loss has begun. Jason’s beard started falling out in clumps last night, and he can pull out chunks of his hair this morning. Though, he pulled on some leg hairs and those were not ready to budge. He let out a high-pitched, “Youch!” This made me laugh.

I bought him a gift a few days ago that will hopefully arrive in the mail soon. I cannot wait to show everyone. I am pretty proud that I thought of it and I know he is going to love it. Plus, he will be the only person he knows to own one. Hopefully he will let me take his picture with it when it arrives. I have a feeling a lot of chemotherapy patients will be getting them in the future. No guesses, please. I don’t want him to find out about it and I don’t want others to get it for him before me… It is my gift to my husband.

This morning Jason doesn’t feel too terrible. But he is far from well, and neither of us were able to sleep last night.

Today he is going to shave his head again and shower. I am going to try to work using the tiny bit of energy I stored after only two hours of sleep. While I am here I want to be able to keep my current job and still take care of my husband. It is hard to work with interruptions every half hour that last between 5 and 20 minutes so taking care of Jason will be my priority.  

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