Miracles

It has been nearly one year since I wrote on this blog and there is a lot of information that I will be sharing with you soon. This year has been incredibly difficult and I plan on providing updates about Jason again. Unfortunately there is not a lot of good news I can share with you. We are going through more tough times and Jason really needs your prayers for his healing.

In addition to prayers, I am asking for something else. Would you please consider sharing with me your true stories about miracles that have happened to you, your family or your friends? As I have stated, this year has been tough for us. It would be wonderful to read some positive true miracles!

Please share your stories with me by emailing this address:
healmyhusband@gmail.com

I am hoping that we will be encouraged by your stories as we continue hoping for our own miracle.

God bless all of you and thank you for your prayers.

Day +16: Another Busy Morning

Napping in the sun, wearing the green eye shadow that the nurses thought I was wearing for St. Patrick's Day. 

3:00 AM – Wake up, Vital Checks

5:00 AM – Wake up, Blood test for possible transfusion and for daily results
7:00 AM – Wake up, Meet your nurse for the day, and meet your student nurses
7:30 AM – Can the student nurses perform a Vitals Check and listen to your lungs and stomach?
8:00 AM – Aren’t you going to eat breakfast? How much have you eaten?
9:00 AM – What did you eat? Just a chocolate shake and a strawberry Ensure?
9:15 AM – How many ounces of liquids have you consumed? Plateletes will be ready for you soon.
9:30 AM – Doctors Visit – Numbers are looking good.
9:35 AM – Housekeeping! Can we clean your room? Put on your mask so you don’t breathe the dust!
9:45 AM – Hey, the student nurses forgot some things… Also, here are your pre-meds.
10:00 AM – Your platelets are ready! Let’s get you hooked up.
10:15 AM – Alrighty, 15 minute vital checks while you are getting platelets.
10:30 AM – Vital Check
10:45 AM – Vital Check
11:00 AM – Vital Check
11:15 AM – Aren’t you going to take a shower this morning? Let’s get that started . . .
11:30 AM – Shower
11:45 AM – Can we change your bedding?

Hopefully your morning hasn’t been as busy as ours.

But there is good news: Jason’s hemoglobin did not drop over the course of 24 hours! The doctors have reminded us that it is not unusual for it to be steady and then drop again. For now, it is constant and that fact is so wonderful. Yesterday his hemoglobin was 8.6, today it is 8.6. Plus, his platelet count increased from 6 to 9! As for the white blood cells, Jason has 0.3 of those (300). Which is more than yesterday (woo hoo!) but still quite a tiny number (well, we are getting there).

Last night Jason had a small moment where his blood pressure was pretty high (149/96). We prayed and his next vital check reflected 126/54. His lungs sound great but he will be getting another xray tomorrow to make sure everything is clearing up. Continue to pray for his lungs, general health, and the success of this procedure.

We also had a quick visit this morning from Dr. Peggy. Did you read the blog post about our meeting her? Well, you should go back and find it. She performed the lung capacity tests and the arterial blood draw on Jason before he was admitted. She made us laugh on the day we wanted to cry the most. She found Jason’s room and came to visit, bringing her smile, her jokes, and a book to borrow, Unbroken, by Laura Hillenbrand. Made my day.

If the day relaxes a little then Jason and I will take a small walk, eat a late lunch, and try to nap between interruptions. Hopefully today will not be any more eventful.

Since I was up before the sun, I figured I would snap some pictures.

Happy New Birthday

“Happy New Birthday!” Shouted the cheerful nurse who entered our room at 6:00 AM. We took a long pause.

Yes, that’s right, it is Jason’s new birthday. Something we had never heard but makes a great deal of sense. Today, March 5, 2013 is a day we hope to be able to celebrate. A day we can look back to and say, “That was one of the best decisions we have made.” A day about which we can tell our children (if we choose, as a married couple, to have any children), A day we can smile about and cheerfully celebrate every time it arrives.

While there are some around us who look at us with furrowed brows, pursed lips, and concerned eyes, we are looking at each other with excitement. Don’t get us wrong, we are not enjoying the pain and the idea that this may not work. But we believe that it will work. And we are hopeful.

No one can fully understand what it is that we have gone through together. Perhaps they can quote facts and numbers, and repeat the story as it was told to them by someone who heard it from someone who told them, but only Jason can know what he felt and understand his situation.  I am proud of who my husband has become despite all that he has faced.

Today is a good day but we have a long way to go. Let’s hope that the effects of the chemotherapy do not make him too ill. Let us also hope that, during the three months of home isolation, he will not be exposed to any sickness that could harm his health and recovery. Let us hope that in the next six months of avoiding groups and events he will not get bored or fatigued. Let us hope this works.

Just moments ago Aaron left the surgery unit to arrive on the same floor, in the room across the hall from Jason. My husband stood in the hallway , so thrilled to see his big brother coming. And then Jason disappeared, ducking into his own room. What happened? I smiled at Aaron, who likely doesn’t remember this, and then I peeked into my husband’s bedroom.

I saw the tears splash on the faux wood floor before my eyes gazed into my husband’s. He was crying. His cheeks were red, his eyes were small and wet, and he put his face in his hands. Reaching for some tissues, I asked him what was wrong. He explained to me that he didn’t want to have to see his brother in that condition; on a bed, tired, eyes barely open, absent of expression. And all for him.

Whatever is happening with Aaron and Erica in their room is their own business. We have been reassured by doctors and nurses that he will be just fine. Other than that, we will wait until the facts emerge before we speculate about his condition and what he went through. I hope he has some funny stories and we hope to visit his room soon. What I can discuss is Aaron’s contribution and dedication to his brother. Jason had two perfect donor matches. When doctors said they were going to choose Aaron, he didn't say, “No.” He didn't ask them to choose the other donor instead of him (and they would have used the other donor if Aaron would have denied donating). Instead, he came to the hospital today knowing that he would undergo a surgical procedure to harvest his bone marrow for his brother. No doubt that his back will be sore for a while, and that he has undergone quite an experience, but now Jason and Aaron will have something to bond over for the rest of their lives. Aaron is a giver, just like Jason, and we are so thankful for his willingness to give what could possibly save my husband’s life.

If all goes well, Jason will be receiving a transplant very soon. And, if all goes well, Jason will share some similarities to his brother.

After a bone marrow transplant, the recipient won’t really know if it is working or not for three weeks. After that, it can still take months for it to grow and be stable. That’s a long time to be unsure of the success of the procedure. But if it works Jason could get Aaron’s allergies, and he most certainly will get the same blood type as his brother. Currently Jason is O-. In a few weeks or months Jason could be A-. If Jason’s donor would have been his sister, Jason’s blood type would have changed but so would his blood gender; his blood would have become female blood. No problems with that, just a neat fact.

So, today we celebrate Jason’s new birthday! Looking forward to the future!

On a less intense note, last night Jason’s upper lip starting swelling. They cannot narrow down the cause but it was pretty funny to see him bumble around here like Daffy Duck.